A QUESTION OF CONSCIENCE –2
THE REALITY OF AGING AND CAREGIVING
‘I and my wife, at last, visited the old age home in our locality for donating all the old clothes that we had been accumulating over the past few years. Though my wife had been reminding me from time to time, my inertia had got the better of my altruistic motives. It had come to a point where there was no more space in the house to store them. Our intentions were good but the execution was flawed. We had been postponing this due to sheer lethargy, and that is how all the good things that you want to do never get done. It requires tremendous effort to veer away from the normal course of leading our lives and take up an activity that would require us to compromise on many of the comforts we have been enjoying. I realized that I was all talk and no action, despite my self- proclaimed empathy. I have avoided the beggars, on the streets, on the doorsteps of the temples, at the traffic junctions, and when they tap on my car windows. I avoid looking at them because I feel uncomfortable. You are really not sure as to who is a genuine sufferer and who a fake. You do not want to be taken for a ride. What is the option if you really feel and want to contribute to the alleviation of this suffering with whatever resources you have with you? I keep asking myself as to how and what difference I could make. I have always shied away from taking the final step.’
This is an
extract from my book ‘I AM JUST AN ORDINARY MAN’ published six years ago. If
you ask me how far I have proceeded thereafter, the reply is, not much.
Whenever I read what I have written it’s with a sense of unease. It’s all words
and no deeds- a question of conscience perhaps? Or rather pangs of
conscience.
When I wrote
about the old age home, it was a home for the destitute. People who have been
abandoned by their near and dear ones, to be taken care of in homes set up by
some charitable trust.
I had earlier
made a review of a book ‘Being Mortal’ by Atul Gawande. This book disturbs you.
It lays bare the reality of aging and increasing dependence. In the chapter
‘Dependence’ Gawande says “It is not death that the very old tell me they fear.
It is what happens short of death – losing their hearing, their memory, their
best friends, their way of life.” He says we do not think about the eventuality
that most of us will spend significant periods of our lives too reduced and
debilitated to live independently. As a result, most of us are unprepared for
it.
In the beginning of his book, Gawande talks
about his grandfather who lived till the age of a hundred and ten years and
ultimately passed away surrounded by a large family in the midst of the people
he loved and in his home. He says “My father’s father had the kind of
traditional old age that from a Western perspective, seems idyllic” He
continues “But in my grandfather’s world, how he wanted to live was his choice,
and the family’s role was to make it possible”. In a splintered world this is
definitely an idyllic if not an impossible situation.
In ‘The
Philosophy of Loyalty” written by a Harvard Philosopher Josiah Royce, Royce
wanted to understand why simply existing – why being merely housed and fed and
safe and alive – seems empty and meaningless to us. What more is it that we
need in order to feel that life is worthwhile? The answer he believed is that
we all seek a cause beyond ourselves. This was to him, an intrinsic human need.
Those who
have read my book ‘Darkness and Beyond’ will be able to connect the following
narration with the story ‘Waiting for Deliverance’ in the book -
Sometime ago
I dropped in at my friend’s place as it was some time since I had seen him (all
this while I was waiting for an opportunity to visit him). When I enquired
about his mother, he took me to her room where I found her lying on a cot
totally immobilized. There was a nurse in attendance. My friend then told me
“She has been like that for more than a year now, partially paralyzed and
failing eyesight. Of course, over the years she had been suffering from a slow
deterioration of her mental faculties. Though she can recollect certain things
from the past, the present to her never really embeds itself in her memory”.
When my friend told her my name there was a faint acknowledgment with her
movable hand. When I leaned close to her, she said in a faint voice “why God does not take me away, why does he make me wait like this?”
We now have
hospices, palliative care and assisted living for those whose children can afford
it and have the inclination to do so. At the higher end of the spectrum, we have
senior homes where you find those who have opted to be there and have the
resources to do so. They come in two categories – those who treasure their own
space and live within a community as they age, and those, whose near and dear
ones are in a faraway land for whom it is possible to come down and meet them
once a while. In these cases, despite the loneliness of living alone, there is
always the comfort that there is someone and a sense of belonging. What about
the destitute you find on the street? The luckier ones are those who have been
taken to the doorstep and abandoned thereafter. What about the man on the
street? Left to himself on the pavements, living on the scraps and leftovers
and the charity of passersby, too infirm to do any sort of labor that could
sustain him to an extent, to one day disappear: an inconsequential existence. Is
it possible to alleviate or decrease such an existence, or do we just let it be,
for we convince ourselves that’s what life is about? A philosophical musing
indeed! As long as poverty exists the disparity in the quality of life will
continue. But in a country as diverse and populated as ours to what extent can
these disparities be removed? Is it possible? It is a Catch-22 situation. But
should it be? Can something be done collectively? There are of course individuals
who from their own experiences of tending to an aged parent or a spouse, strive
to find ways and means of improving the quality of life of the old and infirm. A
welfare state should address this problem for as the years progress the gravity
of the situation will only increase, with an aging population. It is not
only a question of Individual conscience but in the larger scheme of things it
is a Question of Collective Conscience
That day
before I left, my friend said “It is very difficult watching her suffer like
this. I should not say this, but the truth is I am also waiting for her to pass
away so that she is spared of further agony.” I felt sad for him.
This brings
us to another question – When
there are no means of extending life even when it is known that the patients have
passed beyond a stage where subjecting them to painful processes will only end
up in extending the suffering without allowing them to go in peace, is
Euthanasia an answer? Another question of conscience perhaps?
I intend to
examine this – ‘A Question of Conscience – Euthanasia’ in my next post.
